I am afraid this is somewhat true. I have a plethora of symptoms but no one seems to be able to tie them together. Each specialist says 'that's not life threatening' but as I continue to research its seems that all of them may, together, indicate a common cause. But frankly this represents HOURS of patient research and sifting through the slough of disinformation that comprises people on the net using genuine medical concern to sell snake oil.
And remember, doctors are part of a vast bureaucracy. No one gets sacked for abiding by guidelines laid down by NICE.
Even if they are a bunch of CRAP.
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S
Sam45
Yes, but the camera wasn?t an angiogram.
Most of the time that isnt done, just the angiogram.
F
F Murtz
Easy to test, ask for stress test,surely it will show up on the treadmill,home pressure tests are subject to variations
S
Spike
WHS in spades.
My problem was caused by a common food constituent. There's shedloads of info about it on the interweb, most of it rubbish and some of that from the medical profession. In the end it had to be a DIY approach - which worked but it took a long time.
Spot on - it's why doctors stay in their NICE comfort zone.
Yes, but it's official crap that doctors can use in the same way that babies use comforters.
T
The Natural Philosopher
Well IIRC that one was at Papworth, but I forget..I've had so many...
T
The Natural Philosopher
What that PROBABLY shows is that you are healthy but something bad happens when you sit down
What's it like lying down?
Regardless of when it occurs high blood pressure is not good for you.
Are you diabetic or pre diabetic?
T
The Natural Philosopher
I have come to the conclusion that whilst the NHS is great at major disasters and operations - cant fault my cancer op and oncology, the repair of my hernia, and most of my angioplasties - one excepted - the treatment of other stuff that isn't directly identifiable even with a thoroughly helpful and conscientious GP - is very very poor.
And I begin to understand why. Biochemistry is a very complex system, and the knock on between one system and another is huge. What is good is the number of scans and test available, What isn't good is that GPS are jack of all trades and masters of none, and the NHS forces them to treat one symptom at a time.
Whereas as I am learning, *syndromes* often represent an underlying condition. And hen there are two or even three underlying conditions, its even harder to pin stuff down.
For example why I always got worse angina after a pizza...well I am allergic to cheese slightly. It gives me asthma. I have mild COPD. I like italian coffee after a pizza.
The asthma gets slightly worse, and in conjunction with the COPD drops blood oxygen levels below normal, then coffee constricts arteries and I tip over the edge to needing a bit of nitro to keep going...
I woke up this morning with a bit of a wheeze, Then I remembered I had a chunk of stilton as a midnight snack...
But tell that to your GP and you just get a funny look.
S
Sam45
Likely why that one was done, because you have needed so many and they couldn?t work out what the problem was previously.
S
Spike
BTDT....:-(
T
The Natural Philosopher
Oh no, they knew exactly what the problems were. they just cocked up fixing only the *worst* one. With the wrong stent. History: Angina...
1/. Angiogram at Papworth - one artery MISSING, three others narrowed one very badly
2/. Angioplasty. For reasons never explained surgeon fixes only worst one with the wrong sort of stent. Appeared to be reading someone else's notes...
3/. Stent fails after 6 months, back in for emergency stent replacement.
45 minutes of hell as surgeon tries to get balloon inside failed stent cutting off all blood supply to heart as he does so.
4/. Partial fix but still not right, so further angiogram at Bury St Edmunds, reveals what first one did, one artery gone two others narrowed and stent holding up OK
5/. Final heart operation two more stents 4 years after first diagnosis. Still not right but about as good as before acute angina first appeared.
So I've been in 5 times and the condition is now as good as it gets with daily meds to help out.
At some stage I distinctly remember seeing on a display a camera image in addition to the x-ray images on a different screen. That might have been the Bury one
N
NY
How reproducible is the problem? If you rest for a while and then stand up, is it more or less guaranteed to happen? If so, can you get your GP practice nurse to take BP and pulse readings in the resting state and then as soon as possible after you stand up or start exercising? How long does it last before returning to normal? What is the symptom - dizziness/fainting?
After I had a heart attack I was put on rest-of-life beta-blockers. The BB can cause short-term dizziness when standing up if the dose is too high. Initially the dose *was* too high and I experienced it very mildly, so they reduced the dose.
A
Andrew
The last thing GPs are interested in, is your own diy readings.
You'll get a 'marker' on your notes.
D
Dave Plowman (News)
Not really surprising. If you know certain foods don't agree with you, why continue eating them?
A
Andrew
More likely to remind you of your daily salt intake limits ..
Stilton is a tad high on the sodium.
D
Dave Plowman (News)
Really? A pal was provided with a blood pressure device - similar to the small portable ones doctors themselves use. And told to log his BP each day.
A
Andrew
Just don't mention 'Dr. Google' though !
T
tim...
"Harry Bloomfield"; "Esq." snipped-for-privacy@NOSPAM.tiscali.co.uk> wrote in message news:r6l6t2$77v$ snipped-for-privacy@dont-email.me...
2mg (of that drug) is tiny [1]
doc wanted me to increase my dose to 8mg to get the require BP reduction
at that point the side effects kicked in big time and I was physically ill
even 6mg was not good.
We went back to 4 mg
[1] it varies a lot, for a different drug the minimum dose is 25mg
tim
T
tim...
GPs are rubbish when it comes to BP
even many consultants are rubbish (because it's not a specialisation requiring a full time person in most areas and they major in something else the rest of the week)
tim
Note to TNP, when I say area above I'm referring to geography, not medicine.
D
Dave Plowman (News)
Yup. I'm on Losartan. That seems to be prescribed in 25mg units.
Only symptom I had was nose bleeds. Quite spectacular. Oddly, my pressure had been checked quite often before those. But no medication recommended.
P
polygonum_on_google
And some usually have doses expressed in micrograms as so little is needed. I take 125 micrograms a day of mine. Quite a lot of people are on even lower doses.
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