Any one know what extra record access would be added, were I to follow the procedure to request access to my 'Full Clinical Record' in systmonline, at my GP surgery? It seems it needs a photo ID to be produced and a form to be completed. I already have access to my default patient records via the systmonline system.
Maybe 'Full Clinical Record' is a custom heading because my GP's SystmOnline only offers 'Patient Record' and 'Summary Patient Record' and also some entries about test results.
I would like SystmOnline to provider a reader which links together the different files you get when you make a request for your medical notes.
+1 I only have access to Patient Record and Summary Patient Record
My records include vaccinations as a child, test results (blood, urine, diabetic eye, bowel cancer screening etc) a brief summary of my all my visits to the doctor, practice pharmacist or practice nurses and a record of all answers given to the standard questions always asked about my condition(s). They include a record of all medication and the dates they were prescribed plus the dates of flu shots etc.
The Patient Record and Summary Patient Record don't differ much. The test results in these pages are just a few lines for each test whereas the Test result page(s) gives the full results, the acceptable range where each result is considered OK and a link to a full description about what each test means,
Apart from the fairly recent addition of childhood vaccinations from 50+ years ago my on-line records are from 2002 onwards, which is probably the year that I first registered with my current GP practice. The GP practice at the time had a fully integrated computer system and all my records with the practice have been in a "digital" form.
When I requested my online records I had to take my photo driving licence or passport to the GP surgery - I already had access to the appointments and repeat prescription pages. I also seem to remember that granting access was based on 2 criteria. i) The GP practice was actually participating in the facility. ii) Individual patient access was at the discretion of the GP
Same here, but the childhood records seem to only have the vaccination dates when they should have been had, rather than actually confirming I had them.
Again, the same here. Rather oddly it suggests 'satisfactory' even when value are slightly outside the range.
Likewise..
I clicked the 'Full Clinical Request' a couple of years ago and got no response at all. I clicked it again yesterday and received a text request from the surgery, to produce photo ID and complete a Subject Access Form - hence my OP.
Which suggests the additional data may include GP's actual notes, rather than just the rather dry data.
My records are just short lists of visits, with no actual detail of the purpose of the visit, apart from a few words.
I see brief test details only and only the surgery's own test results.
Yes, same here. Results from hospital tests are sent to me in letter form, but there is never a mention of those letters in my record - though the GP obviously get copies too - which suspect they file along side my records.
The test results I've seen that are out of range are usually accompanied with an addition note suggesting that the result may be related some existing medical condition and should be checked further by the GP. If the GP considers the result "normal" for the type of condition, or age of the patient, the summary record may show satisfactory and the medical condition for which drugs are being taken is under control.
Perhaps the GP thinks it unwise to provide medical information to some patients unless on a face to face visit.
I wouldn't worry about it. It's only a matter of time before everyone's full records are released onto the net by some or other group of hackers with a point to prove, so you may as well wait until then and save yourself the bother.
I have just been to the surgery, to sign up for the extra access. They say it just allows for access to a more detailed record. My more detailed record will be back dated to May 2018, but if there is any specific records I am interested in, they can dig them out going back up to five years. It can take 28 days, before the extra records appear.
On a related matter, I wonder if SystmOnlne provides a electronic reader which knits together all the separate files you get when you maje a subject access request for your medical data.
For example, letters are scanned onto image files but they're not linked to where the consultation notes makes a reference to them. Similarly test results are not linked to any comments about them in the consultation notes. It's very fragmented.
I realised that when I saw the vacs for polio - I had polio as an infant but, thanks to my father, have been active for >65 years and can still walk at >4mph for 3 - 4 hours - then I need a pub!
I've requested more access and will see what happens.
1993/4 for me with a 28.8k modem that was not approved to be connected to the UK phone system. My ISP charges plus phone charges to a national number (not local) at the time were greater than I'm now paying for line rental and broadband.
I remember the first modem I saw. You clipped the phone receiver into it. But being from the US, UK ones didn't fit - so you had to unscrew the ear piece and fit it and the mic separately.
Combining numerical, tabular data like FBC, LFTs etc with free-format text and doodles of operation sites has always been a problem for anyone trying to computerise NHS path lab results.
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